We are headed home again, home again! Grace had 2 days of her video EEG monitoring, and all looks normal. She did not have any of the specific spasms that had created the concern in the first place while she was hooked up to the EEG, but the doctors feel pretty good that she is not showing signs of epilepsy. The particular form of epilepsy they were concerned about was infantile spasms, based on the video we took of Grace, her age and her cardiac surgery history. When kids have these spasms, their EEG looks abnormal even in between episodes. So while they can't tell us with 100% certainty that she does not have any seizure disorder, they feel the risk is very low. We will follow up with the neurologist in 6 weeks, and if there are still concerns he will order a repeat EEG.
We're celebrating this as very good news! Now to get this glue out of her hair....
YIPPPEEEEEE! xoxo
ReplyDeleteKeep up those heels and celebrate - one day at a time! We are on the countdown until we will see all of you - lots of hugs and kisses....
ReplyDeleteKICK UP THOSE HEELS AND CELEBRATE!
ReplyDeleteOh Grace, how did you get glue in your hair?! Heehee.
ReplyDeleteI'm so glad she's doing so well. Each little victory is a huge one!
hello from Eileen Burns!
ReplyDeleteJenni I have been following your blog from the beginning and want you to know how much I admire you and Darren. You are in my prayers and have been from the beginning. Grace is such a beautiful beautiful baby, despite her Grammy!! xoxo
YAYYYYYYY GGGRRRAAACCCEEE!!!
ReplyDeleteCongratulations!! Another bump in the journey is over.
ReplyDeleteSweet Grace is saying "what!! did you
say glue? If you touch my hair, I won't
be so sweet!!
More blessings and prayers.
Shannon
I AM SOOOO HAPPY FOR HER AND FOR YOU! Congratulations! I hope it is smooooth sailing from here on out!
ReplyDeleteGrace,
ReplyDeleteI love you.
A.J.
What good news for a little sweetie girl.
ReplyDelete